| Name | Role and Contribution |
| Professor Pierre Brissot | A world-renowned hepatologist from Rennes, France. He is a co-founder of EFAPH and has served as the Chairman of the Scientific Committee. His clinical research has been fundamental in establishing modern protocols for treating iron overload. |
| Jean Rialland | The first President and co-founder of EFAPH. He was instrumental in uniting the various national patient associations under one European umbrella in 2005 to ensure that patients had a voice at the EU level. |
| Dr. Graça Porto | The newest honorary member (appointed Dec 2025). A leading haematologist from Portugal and long-time President of the Scientific Committee, recognised for her bridge-building between research and patient care. |
European Federation of Associations of Patients with Haemochromatosis
