The Federation was founded by Jean RIALLAND (First EFAPH President) and Professor Pierre BRISSOT (MD, PhD), in Rennes (France) in August 2005.
The initial founding countries of the European Federation of Associations of Patients with Haemochromatosis (EFAPH) were France, Belgium, and Spain.
EFAPH is a non-profit organisation and can only carry out its work thanks to the commitment of a team of volunteers. It is dependent on the funds raised from membership, donations, grants and sponsorship.
The present version of the Statues were endorsed at the Annual General Meeting held on 27 March 2023 in Frankfurt am Main, Germany.