If you or a familiy member is a affected with haemochromatosis and you can not find your national flag in the list below please contact info@efaph.eu. We will try to help you with information and contacts and would be delighted to assist your wish to establish a patient support group or association in your contry.
AUSTRIA | |||
BELGIUM | Hemochromatosis Belgian Association HBA | info@hemochromatosis.be www.hemochromatosis.be | EFAPH member |
Haemochromatose Vereniging Vlaanderen HVV | www.haemochromatose.be | EFAPH member | |
CZECH REPUBLIC | Contact: Martin Vokurka mvoku@lf1.cuni.cz | ||
DENMARK | Dansk Hæmokromatoseforening | Contact: www.haemokromatose.dk | EFAPH member |
FRANCE | Fédération Française des Associations de Malades de l’Hémochomatose FFAMH | ffamh@hemochromatose.org www.ffamh.org | EFAPH member |
GERMANY | Hämochromatose-Vereinigung Deutschland e.V. HVD | dr.butzeck@haemochromatose.org www.haemochromatose.de | EFAPH member |
GREECE | Contact: Photis Beris, MD,PhD Giorgio Papanikolaou, MD,PhD Laikon Hospital, Athens +30 210 74 56 902 | ||
HUNGARY | Hemokromatozisos Betegek Eyesülete HBE | info@hemokromatozis.hu www.hemokromatozis.hu | EFAPH member |
ICELAND | Icelandic Association for Haemochromatosis patients SFGI | Contact: hcjons@gmail.com | |
IRELAND | Irish Haemochromatosis Association IHA | info@haemochromatosis-ir.com www.haemochromatosis-ir.com | EFAPH member |
ITALY | Associazione per lo Studio dell’Emocromatosi e delle Malattie da Sovraccarico di Ferro | info@emocromatosi.it www.emocromatosi.it | EFAPH Member |
NETHERLANDS | Hemochromatose Vereniging Nederland HVN | info@hemochromatose.nl www.hemochromatose.nl | |
NORWAY | Norsk Hemokromatose- forbund NHF | info@hemokromatose.no www.hemokromatose.no | EFAPH member |
POLAND | Contact: Dr. Katarzyna Banaskiewicz kjbanaszkiewicz@wp.pl Prof. Katarzyna Sikorska ksikorska@gumed.edu.pl University Center of Maritime and Tropical Medicine, Gdynia, Department of Tropical and Parasitic Diseases Gdansk, Poland | ||
PORTUGAL | Associaçao Portuguesa de Hemocromatose APH | Contact: Graça Porto gporto@ibmc.up.pt www.aphemocromatose.org www.facebook.com/aphemocromatose | EFAPH member |
ROMANIA | Contact: Dorica Dan Romanian National Alliance for Rare Diseases RONARD doricad@yahoo.com | ||
RUSSIA | Contact: Irina Myasnikova Union of Patients with Rare Diseases and patients’ organizations dealing with Rare Diseases, President Miv20@mail.ru | ||
SPAIN | Asociación Española de Hemochromatosis AEH | aeh@hemocromatosis.es www.hemocromatosis.es | EFAPH member |
SWEDEN | Contact: Ketil Toska info@hemokromatose.no www.hemokromatose.no | ||
SWITZERLAND | Schweizer Selbsthilfegruppe Hämochromatose | Contact: Gerda Horn www.sh-haemochromatose.ch Prof. Pierre A.Krayenbühl, Zürich www.haemochromatose.ch | EFAPH member |
UNITED KINGDOM | Haemochromatosis Society UK | info@haemochromatosis.org.uk www.haemochromatosis.org.uk | EFAPH member |