Europe

If you or a familiy member is a affected with haemochromatosis and you can not find your national flag in the list below please contact info@efaph.eu. We will try to help you with information and contacts and would be delighted to assist your wish to establish a patient support group or association in your contry.


AUSTRIA

BELGIUM
Hemochromatosis Belgian Association
HBA

info@hemochromatosis.be
www.hemochromatosis.be
EFAPH member
Haemochromatose Vereniging Vlaanderen HVVwww.haemochromatose.beEFAPH member

CZECH REPUBLIC
Contact:
Martin Vokurka
mvoku@lf1.cuni.cz

DENMARK
Dansk HæmokromatoseforeningContact:
Gert Nǿrgaard Madsen
Tel. +45 2020 4942
gert.madsen@haemokromatose.dk
www.haemokromatose.dk

FRANCE
Fédération Française des Associations de Malades de l’Hémochomatose
FFAMH
ffamh@hemochromatose.org
www.ffamh.org
EFAPH member

GERMANY
Hämochromatose-Vereinigung Deutschland e.V.
HVD
dr.butzeck@haemochromatose.org
www.haemochromatose.de
EFAPH member

GREECE
Contact:
Photis Beris, MD,PhD
Giorgio Papanikolaou, MD,PhD
Laikon Hospital, Athens
+30 210 74 56 902

HUNGARY
Hemokromatozisos Betegek Eyesülete
HBE
info@hemokromatozis.hu
www.hemokromatozis.hu
EFAPH member

ICELAND
Icelandic Association for Haemochromatosis patients
SFGI
Contact:
hcjons@gmail.com

IRELAND
Irish Haemochromatosis Association
IHA
info@haemochromatosis-ir.com
www.haemochromatosis-ir.com
EFAPH member

ITALY
Associazione per lo Studio dell’Emocromatosi e delle Malattie da Sovraccarico di Ferro
info@emocromatosi.it
www.emocromatosi.it
EFAPH Member

NETHERLANDS
Hemochromatose Vereniging Nederland
HVN
info@hemochromatose.nl
www.hemochromatose.nl

NORWAY
Norsk Hemokromatose-
forbund
NHF
info@hemokromatose.no
www.hemokromatose.no
EFAPH member

POLAND
Contact:
Tomasz Szelagowski
Federation of Polish Patients FPP

PORTUGAL
Associaçao Portuguesa de Hemocromatose
AHP
GPorto@ibmc.up.pt
www.aphemocromatose.org
EFAPH member

ROMANIA
Contact:
Dorica Dan
Romanian National Alliance for Rare Diseases RONARD
doricad@yahoo.com

RUSSIA
Contact:
Irina Myasnikova
Union of Patients with Rare Diseases and patients’ organizations dealing with Rare Diseases, President
Miv20@mail.ru

SPAIN
Asociación Española de Hemochromatosis
AEH
aeh@hemocromatosis.es
www.hemocromatosis.es
EFAPH member
SWEDENContact:
Ketil Toska
info@hemokromatose.no
www.hemokromatose.no

SWITZERLAND
Schweizer Selbsthilfegruppe HämochromatoseContact:
Gerda Horn
www.sh-haemochromatose.ch

Prof. Pierre A.Krayenbühl, Zürich
www.haemochromatose.ch
EFAPH member

UNITED KINGDOM
Haemochromatosis Society UKinfo@haemochromatosis.org.uk

www.haemochromatosis.org.uk
EFAPH member
Source: The flags are copies from Wikipedia.

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