European Federation of Associations of Patients with Haemochromatosis

National HH-Associations Europe


AUSTRIA

DENMARK
Dansk Hæmokromatoseforeningwww.haemokromatose.dk

FRANCE
France Fer Hemochromatose (FFH)contact@hemocromatose.orgwww.hemochromatose.orgwww.facebook.com/franceferhemochromatose

GERMANY
Hämochromatose-Vereinigung Deutschland e.V.
HVD
dr.butzeck@haemochromatose.orgkontakt@haemochromatose.orgwww.haemochromatose.orgwww.facebook.com/haemochromatosevereinigung

HUNGARY
Hemokromatozisos Betegek Eyesülete
HBE
info@hemokromatozis.huwww.hemokromatozis.huwww.facebook.com/hemokromatoziswww.youtube.com/@Hemokromatozis-Hungary

ICELAND
Icelandic Association for Haemochromatosis patients 
SFGI
hcjons@gmail.com

IRELAND
Irish Haemochromatosis Association
IHA
info@haemochromatosis.iehttps://haemochromatosis.iewww.facebook.com/irishhaemochromatosisassociation

ITALY
Associazione per lo Studio dell’Emocromatosi e delle Malattie da Sovraccarico di Ferroinfo@emocromatosi.itwww.emocromatosi.itwww.facebook.com/emocromatosiwww.instagram.com/emocromatosi/t.me/emocromatosiwww.whatsapp.com/channel/0029VaChd2w4yltKS7nzBT0zwww.youtube.com/channel/UCFlIiNRqFaVNw_W03Eq04BQ

NETHERLANDS
Hemochromatose Vereniging Nederland
HVN
info@hemochromatose.nlwww.hemochromatose.nlwww.facebook.com/HemochromatoseHVNwww.linkedin.com/uas/login?session_redirect=https%3A%2F%2Fwww.linkedin.com%2Fcompany%2Fhemochromatose-vereniging-nederland-hvn-%2Fabout%2F

NORWAY
Norsk Hemokromatose-
forbund
NHF
info@hemokromatose.nowww.hemokromatose.nowww.facebook.com/hemokromatose

POLAND
Contact:
Dr. Katarzyna Banaskiewicz
kjbanaszkiewicz@wp.pl 
Prof. Katarzyna Sikorska ksikorska@gumed.edu.pl

University Center of Maritime and Tropical Medicine, Gdynia, Department of Tropical and Parasitic Diseases
Gdansk, Poland 

PORTUGAL
Associaçao Portuguesa de Hemocromatose
APH
Contact:
Graça Porto
gporto@ibmc.up.pt

www.aphemocromatose.orgwww.facebook.com/aphemocromatose

ROMANIA
Contact: 
Dorica Dan 
President of the Romanian Prader Will Association and the Romanian National Alliance for Rare DiseasesVice President of EURORDIS 
doricad@yahoo.com

RUSSIA
Contact:
Irina Myasnikova 


Miv20@mail.ru

SPAIN
Asociación Española de Hemochromatosis
AEH
aeh@hemocromatosis.eswww.hemocromatosis.esfacebook.com/profile.php?id=100057643952290www.youtube.com/channel/UCy8RVPmu4iRwo4w1Rqxrv0w
SWEDENkontakt@hemokromatosforbundet.sehttps://www.hemokromatosforbundet.sehttps://www.facebook.com/hemokromatosforbundet/

SWITZERLAND
Schweizer Selbsthilfegruppe Hämochromatosekontakt@haemochromatose.ch
www.haemochromatose.ch

UNITED KINGDOM
Haemochromatosis Society UKinfo@haemochromatosis.org.ukwww.haemochromatosis.org.uk
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